I’ve hesitated writing about endo for Endometriosis Awareness Month because I feel like I’ve said so much already.
But it’s important to talk about, and I want to talk about how lucky I am.
I still have endometriosis, I’m in some kind of pain most of the time and pursuing this diagnosis has not been easy, and comprehending living with chronic pain is an uphill battle.
But I’m really lucky in that so many of the people around me are so accomodating and compassionate.
I go to a university that has made accomodating my disability really straight forward and not incredibly stressful.
I have friends and family who take me at my word and trust me as the person who knows my body and my condition- which isn’t a given.
It’s not that it shouldn’t be, but it’s really hard to understand what it is like to live with this and get your head around the seemingly endless list of symptoms.
Unfortunately some have more of this understanding because they’ve seen a flare up unfold.
Almost every member of my immediate family has tried to call an ambulance for me, which must be pretty traumatic.
But I’m so lucky that I have people who will make simple accomodations like making sure I have an actual mattress to sleep on after nights out or on weekends away.
Who make sure that I’m sitting in a chair that isn’t going to make my body hurt.
I’m so lucky to have a grandmother who cuts out and mails me every article she reads that even mentions endometriosis.
I’m really lucky I have people in my life who will ask if there is a heat pack they can warm up when I can’t move.
I’m really lucky that the people I love don’t expect me to be okay all of the time and don’t expect me to always be coping.
Most of all though, I’m lucky that while my pain has spanned years it only took me five months after seeing a gynaecologist to have surgery to diagnose and excise endometriosis.
And because I was able to do this through the public system.
That I’ve had less than $100 in doctor and hospital fees.
I am so unbelievably lucky that it didn’t take seven to twelve years of doctors appointments and thousands of dollars in medical bills to get the answers I needed.
I can’t say that the support and the diagnosis make living with this easy, I’m not sure that anything can make this easy.
I’m living with a disease that has no cure, in a system where I’m yet to meet a doctor who will actually prescribe me pain killers.
But I honestly don’t know how I could live with this everyday without the people in my life.
So this Endometriosis Awareness Month, please treat people living with endo with compassion and keep listening to us and learning about what we go through.
You have no idea how much we appreciate it.